VIDEO: Protective Suit Frees Brevard Child With Rare Sunlight Disease
By Derrol Nail, Fox35Olando.com // January 30, 2016
Tomas has Xeroderma Pigmentosum
ABOVE VIDEO: Tomas Zeman loves playing with his older brother Ronald, but the six-year-old Slovakian child is a prisoner of the sun, because of a rare skin disease.
(Fox35Olando.com) – BREVARD COUNTY, FLORIDA – Tomas Zeman loves playing with his older brother Ronald, but the six-year-old Slovakian child is a prisoner of the sun, because of a rare skin disease.
Tomas has Xeroderma Pigmentosum. Which means his skin cannot repair damage made from ultraviolet light, which is contained in the sun. So if he steps out into the sun, even for a few minutes, his skin will blister up, and potentially become malignant skin cancer.
Marek Vozar is a production manager filming a story about Tomas for the popular Slovakian TV show “Seventh Heaven,” which helps people in his country with severe or life threatening diseases.
